Personal Stories

The “C” Word

We are a community of caring people.  People, from different walks of life, who are connected by one single powerful word, which is so devastating to hear or speak, when we or someone we love, is faced with the diagnosis of this dreadful disease known as cancer.  We are in disbelief and shock. If we are lucky there may be remission.  We go through life’s journey and do not pay attention to this word until it affects us directly and hits home.  It’s a word that means a life may be shortened. There may be suffering and pain. There may be a loss of independence.  There may be a finality to the loving person we care about and cherish.  This word fills us with a sense of hopelessness, anxiety and sheer terror.

Building Community – Interact in “The Forum”

This website/blog is about building a community of people, who are connected, directly or indirectly, through their involvement with cancer patients – by providing medical services, treatment, supplies, as well as support and love.  We are family members, caregivers, visiting nurses, homecare workers, oncologists, specialists, visiting physicians, technicians, suppliers, pharmacists, social workers, clergy – each of whom affect the patient’s quality of life.  We rely on each other.

We Are Not Alone

What helps us all is knowing that we are not alone, there are other people who are perhaps experiencing the same fate, and the same tumultuous roller coaster of emotions.  Each of us can share and learn from one another by exchanging news, resources, and experiences.  In doing so we gain  some direction, a sense of togetherness- when we have people we can turn to.  We become enpowered by feeling more in control – we gain strength and a sense of hope.

Sharing is Caring   

“Sharing is caring” is the underlying theme that pervades this website/blog.  Here we can share and exchange our personal stories, frustrations, issues and concerns, moments of joy, and exciting discoveries all of which we hope will be represented here.  Everyone is encouraged to interact – tell each other how we can help to provide better supportive cancer care.

EVERYONE IS ENCOURAGED TO SHARE THEIR PERSONAL STORIES.

LET US LEARN FROM EACH OTHER.

Patients, Caregivers, Family Members

Medical Community:  Oncologists, Specialists, Nurses,  & Technicians

Home Care Staff:   Visiting Nurses, Home Aides, Visiting Physicians, Physical Therapists

Other:  Social Workers, Therapists, Clergy, Medical Suppliers, Pharmacists

 

This Web/Blog Administrator’s Pet Peeves

From my personal experiences I have my own concerns about the problems our family was faced with and how we dealt with different situations.  This will be discussed throughout this website/blog. Some of my concerns are the issues facing elderly cancer patients (i.e. questioning the necessity of cancer treatment for the elderly), the lack of knowledge and publicity regarding lung cancer as a women’s cancer, the lack of communication among doctors and their cancer patients, and  the need for providing more humane care towards terminal patients in hospitals, more specifically in Emergency Rooms.  Change is needed for better care.   Let’s hope through our discussions, involvement and advocacy we can effect change.

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