Patient Advocacy, Survivors and Families

Cancer Support and Patient Advocacy Resources

(Prepared by the American Association for Cancer Research – they do a great job in sorting the resources by focus and alphabetical)

http://www.aacr.org/home/survivors–advocates/cancer-resources-mdash;-organizations,-agencies-and-websites/support-and-advocacy-groups.aspx

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These groups are organized by the cancer type or patient population that the group serves (such as brain cancer, colorectal cancer, prostate cancer, pediatric cancer, minorities and special patient populations, etc.)

Tip:  It is helpful to use diagrams and visual maps which can help one organize all aspects of a patients medical care.   It is important for every patient to appoint an advocate/caregiver, who is the central point of communication for the patient and is on top of all the medical services, medicine (& drug interactions), appointments and daily health status.

This advocate/caregiver acts as a coordinator among the doctors.  Do not rely on the doctors to communicate with one another, especially when complications or changes in the patient’s health arises.

 

 

 

 

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